Aboriginal families with MJD from Groote Eylandt and Ngukurr, local community researcher partners (CRPs) and a non- Indigenous researcher from James Cook University have been working together on this project. The aim is to find the best ways for families with MJD to keep walking and moving around. Families lead the research, as exercise is helping them stay strong, but they also want to know what is helping other families with MJD around the world.
The team has been listening and working together with families at the beach, in the bush, under big shady trees, in their homes and communities, speaking in each other’s languages and putting ideas together. Families feel that staying strong on the outside (physically) and on the inside (emotionally, mentally, spiritually) is critical for keeping walking and moving around as long as possible.