Assessing supportive care needs of Indigenous cancer survivors' caregivers

Start date

2018

End date

2023

Research partner(s)

Charles Darwin University

University of Queensland

This project aims to gather data about the needs of partners and caregivers of Aboriginal and Torres Strait Islander cancer survivors. The project will undertake a comprehensive exploration of the experiences of caregivers and develop a psychometrically tested tool to assist in identifying unmet needs. The project expects to provide new knowledge about the needs of this population and a validated tool to better assess these needs. The project will result in improvements in the assessment of unmet supportive care needs in caregivers of Indigenous cancer survivors, leading to more timely interventions, and a better quality of life for patients and caregivers.

Output(s)

The experiences of caregivers of Indigenous cancer survivors in Australia, Canada, New Zealand, and the United States: a systematic review

Type

Journal article

Authors

Masa, Adam J.; Martinez-Bredeck, Helena; Butler, Tamara L.; Anderson, Kate; Girgis, Afaf; Aoun, Samar M.d,; Cunningham, Joan; Wakefield, Claire E.f; Shahid, Shaouli; Smith, Allan B.; Garvey, Gail.

Publisher

Journal of Psychosocial Oncology Research and Practice

Publication date

2020

Rights notice

This is an open access article distributed under the terms of the Creative Commons Attribution-Non Commercial License 4.0 (CCBY-NC), where it is permissible to download, share, remix, transform, and buildup the work provided it is properly cited. The work cannot be used commercially without permission from the journal. http://creativecommons.org/licenses/by-nc/4.0

Journal of Psychosocial Oncology Research and Practice 2(4):p e040, December 2020. | DOI: 10.1097/OR9.0000000000000040

File

the_experiences_of_caregivers_of_indigenous_cancer.4.pdf

Link

https://journals.lww.com/jporp/fulltext/2020/12000/the_experiences_of_caregiver…

Project information

Project ownerNot listed

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Community / Language group(s)

Project contact(s)

Professor Gail Garvey

g.garvey@uq.edu.au

Researcher(s)

Professor Gail Garvey
Professor Afaf Girgis
Professor Samar Aoun
Professor Joan Cunningham
Professor Claire Wakefield
Dr Shaouli Shahid
Dr Allan Smith

Supporting partner(s)

Complete

Yes

Start date

2018

End date2023

Topic(s)

Closing the Gap focus

Funder(s)

Organisation(s)

Indigenous involvement

Indigenous involvement notes

Professor Gail Garvey is a proud Kamilaroi woman, a NHMRC Research Leadership Fellow, and Professor of Indigenous Health Research in the Faculty of Medicine at the University of Queensland.

AM and HMB contributed equally and are co-first authors.

We systematically searched PsycINFO, PubMed, CINAHL, Embase, Scopus and Web of Science using keywords relating to Indigenous populations; caregivers; and cancer. Data were extracted from original qualitative research articles published up to March 2020...Studies were included if they were published in English, peer-reviewed, and provided original qualitative data that reported the experiences of caregivers (both Indigenous and non-Indigenous) of Indigenous adult cancer survivors from Australia (Aboriginal and Torres Strait Islander people), Canada (Aboriginal, First Nations, Inuit, or Métis people), New Zealand (Māori), or United States (American Indian, Native American, Alaskan Native, Inuit, and Native Hawaiian people).

Assessing supportive care needs of Indigenous cancer survivors' caregivers

Output(s)

Aboriginal and Torres Strait Islander people should be aware that this website may contain images, voices and names of deceased persons.

AIATSIS acknowledges all Aboriginal and Torres Strait Islander Traditional Custodians of Country and recognises their continuing connection to land, sea, culture and community. We pay our respects to Elders past and present.